During the last two years our goal has been to locate and acquire a facility
to provide a home for these patients, and their twenty-four hour a day
caregiver, who are undergoing treatment for hematological malignancies and bone
marrow/stem cell transplants. The Miracle House is being specifically designed
to provide adequate living space, a positive and supportive atmosphere and an
alternative for patients who must travel great distances in order to receive
specialized treatment not available in their own communities. The bone marrow
transplant patients come to the Charleston area from throughout South Carolina
and from the surrounding states. Insurance does not cover their stay in local
hotels and patients must pay out of pocket for all living expenses. The Miracle
House will provide for better patient care for those receiving "routine"
treatments for these diseases and for those in related research projects who
cannot afford to stay in close proximity to the area professionals, hospitals,
and cancer center.
The purpose of the Miracle House is to provide a "home like" atmosphere for
interaction among other patients and their caregivers, and to provide an
opportunity to focus on the additional needs of transplant patients. Leukemia
treatment far from home is a financial and emotional burden to families. We
intend to provide housing for patients and their caregivers regardless of their
financial situation. However, what often takes the heaviest toll on patients is
the emotional isolation of living away from family and friends when their
support and closeness is most needed. The Miracle House will bring these
patients together and allow them and their caregivers to share their common
experiences and problems, to learn from each other, and to gain strength from
knowing that they do not have to face these challenges alone. The emotional and
financial hardship of obtaining specialized treatment in an unfamiliar city adds
to the already traumatic pressures facing patients and their families. The
Miracle House will help to ease this burden by providing a "Home Away From
Home."