We are a 501c3 . We were established 25 years ago and we provide Research, Support and Education to people with these disorders, family members or friends. We also provide educational materials to physicians.

We work with a Medical Advisory Board, a Board of Directors and a Research Committee.

Medical Conference - 1-3 days July 24-27 - Experts from around the country speaking. learn and also make lifelong friendships. You are not ALONE . Dinner with auction Friday evening- Where Hilton Universal- go to oue website for details www.ASAP.org

Our mission statement is To improve the lives of persons affected by syringomyelia, Chiari malformation and related disorders while we find the cure.

Our Vision is A world without the devastating effects of syringomyelia, Chiari malformations and related disorders.

We have webinars, a yearly conference, do research, have support groups throughout the country, A Kids For A Cure Club, newsletter, website with up to date info plus videos,  email communication with other members through a Listserve and a message board in which you can post questions.

We are on  Facebook Page , Linked In, Pinterest, and Twitter